Residence: Coconut Creek
Occupation:ย Owner, UnBRCAble Boutique
Age: 35
Diagnosed: January 2004, age 21, as BRCA2-positive
Treated at: Broward Health Imperial Point, Fort Lauderdale
The Discovery
โMy aunt passed away at 30 of breast cancer, so we knew we had to do checks early. In my first self-breast exam [at 18], I found a lump. The gynecologist sent me to a breast surgeon. We did a biopsy; it was benign. A year later, I did a biopsy on the other side and it was benign. I had a mammogram and an ultrasound or an MRI every six months.
โAt 21, I was doing another self-exam, and I found a bump. I was like, โIโm not doing another biopsy. I want to know what weโre going to do.โ โฆย [My doctor] said, โWhy hesitate to do [genetic] testing? Just get your answers.โ I didnโt want the unknown anymore. If I had the gene, then I knew what I had to do whether it took time to accept or not.
โDid I know how much stress it was going to put on my life when it came back positive [for BRCA2]? No. At the same time, I looked at it on the flip side. In life, youโre thrown a lot of obstacles, but I could save my life.โ
The Treatment
โMy goal, once I had a second child in 2012, was to have surgery. โฆ The first surgery was a hysterectomy [in June 2015], so I no longer had a chance for ovarian cancer. Six months later, I had a prophylactic bilateral mastectomy with reconstruction. I was in and out of the hospital for two weeks because I needed an IV and antibiotics due to an infection.
โMy body rejected one of the expanders six weeks after the surgery, so I had to go back in and have a saline expander. [Editorโs note: Milgram-Posner was part of a clinical trial for expanders called airXpanders.]
โAfter the surgery for the saline expander, I walked around flat-chested on one side for [several] months. I had drains. … I had to push myself through it. I [ended up being] out of work for six months.
โI couldnโt move my left arm. I had a lot of nerve damage, so I had to get some nerve blockers and physical therapy because the pain was pretty intense. Then, my incisions got infected, so I had to have home nurses check on me. That was February 2016. I had my reconstruction in August 2016.โ
The Journey
โข โ[Being] flat chested on one side for [several] monthsโthat killed my self-image. I had to stuff my shirt if I wanted to go out. But now, looking down and saying Iโm beautifulโI accept that more. Before, I never told myself I was beautiful. I never took care of my self-image. Iโd walk with my head down because I had so much weight on my shoulders.โ
โข โWhat I thought was going to be my last phase [of reconstruction] was not. And telling [my daughter] that was heart-wrenching. She didnโt understand why this was happening to me and only wanted me back to meโthe sports mom. She stood by my side and helped me get up, rubbed oils on me, made sure that my hair was done. I tried to perk up as much as I could.โ
โข โ[After] my last surgery, I come home and [my daughter] says, โYouโre like a butterfly. You transformed.โ Four stages, four surgeries. It was interesting how she put it all together in the perspective of a life cycle.โ
โข โJust looking at my two kids every day, it was an honor to know that this was why I did it. They gave me the push to go through it every day because it wasnโt easy to swallow.โ
โข โI started [a private Facebook group named BRCAStrong] right before my hysterectomy. Every day, I would post. Nobody could have access unless we approved them, so we could share pictures, positive reinforcements and inspiring quotes. It kept growing. And then I got involved with some other nonprofits. I was like, โI need to do this myself.โโ
โข โYou see nonprofits that are great when youโre diagnosed and going through your journey. But what happens when youโre done? Where do you go for bras? Do you know you canโt wear underwire? Do you know there are post-mastectomy bras, prosthetics, tube drain holders? Who offers that? We want to make you feel comfortable in your body, feel full again. Thatโs what I want to be able to provideโand thatโs really why I [founded the nonprofit organization, BRCAStrong].โ
The Lessons
โข โOne person told me that you canโt empower others until you empower yourself. If you want to stand up there and educate somebody, how are you going to do that if you donโt like what you physically are?โ
โข โIโm a single mom of two. Iโm a business owner. I have a nonprofit. I had to remind myself of all the positives and the differences that Iโve made in some of these womenโs lives [through the Facebook group and the nonprofitโs events]. Going online and seeing people using #BRCAstrong and #unBRCAbleโto know that is my self-worth.โ
โข โI didnโt think I had the courage, strength and audacity to do what I did. โฆ Iโve learned that Iโm stronger than I thought I was.โ
โข โThe words โprevive, inspire and thriveโ are on my [BRCAStrong] logo. Three words of inspiration from my heart to yours. โฆ I want to inspire as many women as I can.โ
[Editorโs note: BRCA2, according to the National Cancer Institute, is defined as a โgene on chromosome 13 that normally helps to suppress cell growth; a person who inherits certain mutations in a BRCA2 gene has a higher risk of getting breast, ovarian … and other types of cancer.โ]
